DRAVET SYNDROME UK

Dravet Syndrome UK is an independent UK charity dedicated to improving the lives of those affected by Dravet syndrome through support, education and medical research.

Dravet Syndrome UK operates on a national level and is made up of a team of trustees and five world-renowned professional advisors. This small team work very closely together to ensure we meet the needs of families affected by Dravet syndrome, whilst working with professionals in the field of neurology on research projects. The charity has three primary aims: To support families affected by Dravet Syndrome emotionally, practically and financially. To fund medical research into Dravet syndrome and other related genetic sodium channel epilepsies. To raise awareness and understanding of Dravet Syndrome within the professional community.